How's your health?

[426Tlgerland]

"stage 3 bordering 4" oh crap...not good, but not bad either.
Have your Drs. given you any indication of how the chemo may affect you?

Yes full info , besides fatigue which is bad , loss of appetite, weight loss , I’ve lost from Feb to June about 6 kg then once I hit around august I dropped another 14 kg to end of October so about just over 20 kg , more chemo means you may hold weight or drop each week , dry retching the day after chemo is nasty , stomach pain feels like you just got punched and winded 24/7 , need pain killers when I go out , hair loss , then as the end game starts to kick in you can loose bladder and bowl control , major weight loss , confusion can set in , and mine most likely the cancer will spread and attack the stomach and liver , the other nasty is chemo I take can give you blood clots in the heart and lungs , pretty much covers it

 

[Merlot]

Yes full info , besides fatigue which is bad , loss of appetite, weight loss , I’ve lost from Feb to June about 6 kg then once I hit around august I dropped another 14 kg to end of October so about just over 20 kg , more chemo means you may hold weight or drop each week , dry retching the day after chemo is nasty , stomach pain feels like you just got punched and winded 24/7 , need pain killers when I go out , hair loss , then as the end game starts to kick in you can loose bladder and bowl control , major weight loss , confusion can set in , and mine most likely the cancer will spread and attack the stomach and liver , the other nasty is chemo I take can give you blood clots in the heart and lungs , pretty much covers it

smoke a joint ,try some gummie bears

 

[BZN]

Yes full info , besides fatigue which is bad , loss of appetite, weight loss , I’ve lost from Feb to June about 6 kg then once I hit around august I dropped another 14 kg to end of October so about just over 20 kg , more chemo means you may hold weight or drop each week , dry retching the day after chemo is nasty , stomach pain feels like you just got punched and winded 24/7 , need pain killers when I go out , hair loss , then as the end game starts to kick in you can loose bladder and bowl control , major weight loss , confusion can set in , and mine most likely the cancer will spread and attack the stomach and liver , the other nasty is chemo I take can give you blood clots in the heart and lungs , pretty much covers it

Oh bugger 426, you're having a very rough time of it with maybe worse to come.
But it's not hard to see you are a real Aussie battler and you're giving it everything you've got.
Hang in there 426 because yuh never know, there may just be something good and positive ahead for you around the next corner, but you gotta get to the next corner to see what it may be.

 

[innsaneink]

striving for life to keep carrying on is a bit of a conundrum - seeing we all come to an end

Depends on the quality of life and wether your ready to go or not

 

[innsaneink]

Yes full info , besides fatigue which is bad , loss of appetite, weight loss , I’ve lost from Feb to June about 6 kg then once I hit around august I dropped another 14 kg to end of October so about just over 20 kg , more chemo means you may hold weight or drop each week , dry retching the day after chemo is nasty , stomach pain feels like you just got punched and winded 24/7 , need pain killers when I go out , hair loss , then as the end game starts to kick in you can loose bladder and bowl control , major weight loss , confusion can set in , and mine most likely the cancer will spread and attack the stomach and liver , the other nasty is chemo I take can give you blood clots in the heart and lungs , pretty much covers it

Jesus thats bloody heavy 426.

What hospital are you being treated at?
I was at Westmead then transferred to St George public...theyre stretched to the limit public health but the staff that have looked after me have been great and made it a bit easier....hope youre getting similar experience

 

[Merlot]

Depends on the quality of life and wether your ready to go or not

small majority of cultures fear death , im on the side for celebrating it , its a passage of right ,every body earns it, by all means keep death at bay but don't fear it

 

[BZN]

The words in this song may be a help to someone needing a bit of a lift...
I get knocked down
But I get up again
Yuh never gonna keep me down.

 

[Buttface]

Thanks , stage 3 bordering 4 , no surgery available just chemo to help stop the growth or slow it down , June was 6 to 18 months life span but with a fight could go past that time

Have you spoken with Dr Mittal?

I have / had PC, wrapped around it with the main artery stuck in the middle of the bear hug. 50 days in hospital the first time. They said dead in 18 months, but Dr Anubhuv Mattel said nope I gunna throw the sink at you. 12 rounds of chemo over 9 months, chemo Dr said what are we doing this for you’re fkd, go and live what’s left. I said we doing chemo and then the Whipple. Mittal said the chemo made it unwrap and lean out so he could snip it off at the bottom. Saved my life. I haven’t worked since due to the chemo side effects, which suck, but I’m alive.
If you have not spoken to doctor Mittal do so, that’s my advice.
Good luck.
PM me if ya want.

PS, Billy Rubin is a prick.

 

[Merlot]

Have you spoken with Dr Mittal?

I have / had PC, wrapped around it with the main artery stuck in the middle of the bear hug. 50 days in hospital the first time. They said dead in 18 months, but Dr Anubhuv Mattel said nope I gunna throw the sink at you. 12 rounds of chemo over 9 months, chemo Dr said what are we doing this for you’re fkd, go and live what’s left. I said we doing chemo and then the Whipple. Mittal said the chemo made it unwrap and lean out so he could snip it off at the bottom. Saved my life. I haven’t worked since due to the chemo side effects, which suck, but I’m alive.
If you have spoken to doctor Mittal do so, that’s my advice.
Good luck.
PM me if ya want.

PS, Billy Rubin is a prick.

what is the Whippie,n why is Ruben a

 

[Buttface]

what is the Whippie,n why is Ruben a

The Whipple is the largest op a person can have on the abdomen to save them from pancreatic cancer and Billy Ruben is a prick bcoz if he is high they can’t save your life.

 

[Merlot]

The Whipple is the largest op a person can have on the abdomen to save them from pancreatic cancer and Billy Ruben is a prick bcoz if he is high they can’t save your life.

all new words/names here . just asking. But im still confused on the Billy Ruben

 

[Merlot]

googled it, bugger

 

[426Tlgerland]

Jesus thats bloody heavy 426.

What hospital are you being treated at?
I was at Westmead then transferred to St George public...theyre stretched to the limit public health but the staff that have looked after me have been great and made it a bit easier....hope youre getting similar experience

Royal Brisbane then transferred to Redcliffe , good folks doing a job , the thing I hate most of all is the fact where you go for chemo is packed , sometimes I wait 2 hours before I get a chair to do the chemo , young , old and in between the shit attacks everyone ,

 

[426Tlgerland]

Have you spoken with Dr Mittal?

I have / had PC, wrapped around it with the main artery stuck in the middle of the bear hug. 50 days in hospital the first time. They said dead in 18 months, but Dr Anubhuv Mattel said nope I gunna throw the sink at you. 12 rounds of chemo over 9 months, chemo Dr said what are we doing this for you’re fkd, go and live what’s left. I said we doing chemo and then the Whipple. Mittal said the chemo made it unwrap and lean out so he could snip it off at the bottom. Saved my life. I haven’t worked since due to the chemo side effects, which suck, but I’m alive.
If you have not spoken to doctor Mittal do so, that’s my advice.
Good luck.
PM me if ya want.

PS, Billy Rubin is a prick.

Yes the Billy took about 6 weeks to get right , water and clear soup , jelly , for first 2 weeks then loads of clear liquids and lite meals , I was lucky , no havent spoken to the Doc , I spoke to surgeon at Royal brisbane and got second opinion from leading surgeon in Sydney RPA hospital both said same , to do any surgery the chemo would need to stop the growth and shrink tumour which would or could unwrap a tiny bit , chances are at 3 to 5 % I’ve only done 4 chemo sessions , now I’m getting a port put into chest so I skipped a few sessions and just enjoyed normal life a bit , done some bowls , shopping , re spooled some fishing rods and cleaned them up ready , organised new aircon so wife don’t need to do it later , now gonna get new lounge again so it’s done , bit of painting to be organised just inside so busy bit not overly crook just the stomach pain from the tumour pressing on nerves

 

[supercoach]

Bloody HR departments, one of the biggest bullshit growth sectors of our time.

Can't stand the majority of those fake disingenuous bastards.

Don't worry about them, look after yourself and get well soon. 👍

When I started work HR were called personnel, and they were like Switzerland, they were Independent from management and would be the people you talked to if you had a problem. Than they changed to HR and became the henchmen for management. Thank god I retired ten years ago and all that stuff is behind me

 

[hank37w]

Could not agree more.

 

[Buttface]

Yes the Billy took about 6 weeks to get right , water and clear soup , jelly , for first 2 weeks then loads of clear liquids and lite meals , I was lucky , no havent spoken to the Doc , I spoke to surgeon at Royal brisbane and got second opinion from leading surgeon in Sydney RPA hospital both said same , to do any surgery the chemo would need to stop the growth and shrink tumour which would or could unwrap a tiny bit , chances are at 3 to 5 % I’ve only done 4 chemo sessions , now I’m getting a port put into chest so I skipped a few sessions and just enjoyed normal life a bit , done some bowls , shopping , re spooled some fishing rods and cleaned them up ready , organised new aircon so wife don’t need to do it later , now gonna get new lounge again so it’s done , bit of painting to be organised just inside so busy bit not overly crook just the stomach pain from the tumour pressing on nerves

Port = Pic line?
I had a pic line in. It took them a few goes swapping arms, by the end they had it in the wrong arm and more blood on the floor than inside me, and then Mrs BF walks in and nearly passes out, she thought I was dying right there. Not all nurses are as good as each other.

You see some sad stuff.

Yeah I’m mid major renovation. I got a few mates rates tradesmen in to help me get to a point the Mrs could finish with out me and knew the good tradesmen who’d look after her. There was a few other crazy things that went through my head, I had to learn the Rubicks cube, went fishing and different stuff we did together.

Good luck with it.

And I just wanna say one thing after my post about them saving my life so far.
Touch wood 🪵
They say I’m not in the clear till 5 years of clear scans and I got 3 years to go.

 

[426Tlgerland]

Port = Pic line?
I had a pic line in. It took them a few goes swapping arms, by the end they had it in the wrong arm and more blood on the floor than inside me, and then Mrs BF walks in and nearly passes out, she thought I was dying right there. Not all nurses are as good as each other.

You see some sad stuff.

Yeah I’m mid major renovation. I got a few mates rates tradesmen in to help me get to a point the Mrs could finish with out me and knew the good tradesmen who’d look after her. There was a few other crazy things that went through my head, I had to learn the Rubicks cube, went fishing and different stuff we did together.

Good luck with it.

And I just wanna say one thing after my post about them saving my life so far.
Touch wood 🪵
They say I’m not in the clear till 5 years of clear scans and I got 3 years to go.

Port is a round plastic device , they cut a slot in your chest feeds a line through you to main artery push it into artery then join it to the port , once done they stitch the port in , it sticks out about 20 mm and is the side of a fifty cent coin , they look terrible but they take blood test and do chemo straight into the port in, just use special needle to push through skin, never miss but inputs done under lite a drug , your awake , I’m getting chemo vie it that arvo , port in early , see doc then chemo , should be fun I think ☹️

 

[innsaneink]

Ports save you from constantly having to get cannula put in...hdmi input port

Lucky i got good veins

 

[Buttface]

Port is a round plastic device , they cut a slot in your chest feeds a line through you to main artery push it into artery then join it to the port , once done they stitch the port in , it sticks out about 20 mm and is the side of a fifty cent coin , they look terrible but they take blood test and do chemo straight into the port in, just use special needle to push through skin, never miss but inputs done under lite a drug , your awake , I’m getting chemo vie it that arvo , port in early , see doc then chemo , should be fun I think ☹️

Yep sounds like it’s the same thing, direct feed line for chemo etc. sewn in to your body. There’s nothing fun about it, I did my best to laugh at it. Mine ended up getting blocked and they had to swap sides and do it again. Plus the thing gave me a blood clot right next to my heart they then had to monitor for the next few months.
I didn’t tell too many people about the PC at the time. I seen Mum go through cancer and die within 18 months, and everyone knew about it and everyone spoke to her and treated her differently, other people she hadn’t heard from in years suddenly on the phone. I didn’t want that. If you thought I was a BF before cancer, I didn’t want cancer to change that. But now I will tell my story to other cancer patients bcoz miracles can happen. Sometimes it takes a surgeon to say no, I can do it.
Looking the bright side, I got to watch every game of cricket, the soccer WC, oh yeah the ODI WC that was great. I stayed up for every game, seen Maxi smash 200 and save our Tournament and then we plough through the rest till we won. And as you mentioned before my fishing gear was in top nic and got a workout. You have a dog? Mine hasn’t left my side since that first 50 day spell at RNS. I’m sure he is permanently worried I’m not coming back. I took Mrs BF and The Fonz (my dog) out for little jaunts to the local beaches etc. and now when ever something is going south I picture those mornings with them at the beach and everything starts going north again.
Anyway I’m sure you will have your little jaunts with your loved ones, well I hope so, those little things and times are the best life has to offer. We don’t cherish them enough.