February 9
Monday 12 February is
International Epilepsy Day. This day aims to increase understanding of epilepsy, a neurological condition affecting over 50 million people worldwide. It provides a platform to challenge stigma, highlight lived experience, and advocate for better support, treatment, and inclusion.
Epilepsy can sometimes be caused by head trauma, stroke, infections in the brain, or abnormalities of the brain from birth. Genetics also play a role in some people.
A seizure is a temporary disruption of the electrical activity in the brain. There are many different types of seizures that present in many ways including changes to sensation, awareness, behaviour or movement.
Not all seizures involve convulsions and not all seizures are diagnosed as epilepsy.
International Epilepsy Day helps the public learn what epilepsy is, dispel myths, and better understand the challenges faced by people living with the condition. The goal is to build awareness that leads to empathy, inclusion, and action.
Events and activities take place worldwide - from school and community events to seminars, media coverage, and social media campaigns that amplify the voices of those living with epilepsy.
By taking part in International Epilepsy Day, we join a worldwide effort to reduce stigma, increase understanding, and support the rights and well-being of people with epilepsy everywhere.
International Epilepsy Day has always been a day for the world to listen, learn, and stand with the 50 million+ people living with epilepsy. In 2026, we are taking the next step together.
On International Epilepsy Day 2026, they are launching the Epilepsy Pledge - a new way for our community to turn awareness into tangible progress. The Epilepsy Pledge invites individuals, families, workplaces, schools, and organizations to commit to one concrete action during 2026 that strengthens awareness, safety, inclusion, and community understanding of epilepsy.
Locally, Epilepsy Action Australia (EAA) provides an extensive range of services and practical resources built over six decades of listening to and working with people with epilepsy and their families. Having epilepsy can be a very isolating experience but we want you to know that you are not alone and we are here for you whenever you need us. No matter what your age, epilepsy situation, or where you live, EAA can help you with excellent support, information and education.
In Australia, around 1 in every 150 people are currently diagnosed with epilepsy.
Epilepsy is more common than Parkinson’s Disease, Cerebral Palsy, MS and Muscular Dystrophy combined, but it is still widely misunderstood. For example, many people think seizures are convulsive, but epilepsy can take many forms and affect people differently.
Epilepsy is a neurological disorder and seizures are caused by a disruption of the electrical activity in the brain.
2 out of 3 people with epilepsy become seizure free with medication, however, this means 1 in 3 continue to have seizures despite taking medication.
Epilepsy is not necessarily lifelong. Some epilepsies are age-related and seizures stop by a certain age.
Although some lifestyle changes are necessary, many people with epilepsy are able to lead full and productive lives.
And it is certainly no barrier to achievement –
many well-known people have had epilepsy. There are also some contemporary well-known figures who speak openly about their epilepsy including actors Hugo Weaving and Danny Glover, singers Neil Young and Susan Boyle, and sporting greats such as Tony Greig (RIP) and Wally Lewis. And 2GB morning radio head, Ben Fordham who was diagnosed at age seven; And former rugby league international, Ian Roberts; And Lance “Buddy” Franklin, former AFL star. While Mark Geyer (former rugby league international) is an ambassador for Epilepsy Action Australia (EAA) as his daughters live with juvenile myoclonic epilepsy.
And champion John “Dallas” Donnelly (RIP).
Treatments are getting better. Usually the first choice of treatment is medication. Other treatment options include surgery; Vagus Nerve Stimulation (VNS); the Ketogenic Diet or Modified Atkins Diet; and more recently Deep Brain Stimulation (not yet in Australia). Education and lifestyle changes are also important.
Sometimes specific circumstances can increase the risk of having a seizure. These are usually called seizure triggers. Recognizing these triggers can help to reduce or even avoid seizures. Some common triggers people report include lack of sleep, missed medication, fatigue, physical or emotional stress, hormonal changes and illness.
Epilepsy is managed (depending on severity) Involving medical treatment, lifestyle adjustments, and, for severe cases, specialized care.
Epilepsy treatment is entering a new era, with hope driven by artificial intelligence (AI), genetic research, and advanced therapies. AI is significantly speeding up diagnosis and identifying previously unknown causes, while new genetic discoveries point to personalized treatments. Advancements include targeted drug delivery, neural stimulation, and medicinal cannabis to improve seizure control and quality of life.
So the future is brighter for those with Epilepsy. And with most conditions, communication helps removing fears and stigma.
And that, as a bottom line, is what today is all about.
"For seizure first aid, remember the three S's: Stay, Safe, Side"
"Seizures don't define me; they are just a part of my journey"
Sometimes something in my brain triggers it off”.
“I really believe that by sharing your struggles you are pretty much saving others”.
